For years, healthcare professionals, researchers and other industry “insiders” have been touting the importance of patient and family engagement in their own care. Ironically, though, the critical mass of patients and families who interact with the healthcare system have been marginally involved in this work to characterize what engagement looks like in practice.
This Year’s Theme
That’s why Invitation to Engage is the theme for Patient-Centered Care Awareness Month in 2017. Because we can’t expect engagement from patients and families if we don’t first INVITE their involvement. Engagement in healthcare reverses generations of practices and routines that have historically focused on providing care for patients. In this new era of patient and family engagement, the emphasis shifts to planning care and making decisions with them. With this Invitation to Engage, we signal to patients and families that we simply cannot improve healthcare systems, outcomes or practice without their express involvement.
2017 Patient-Centered Care Awareness Month Activities
This coming October’s campaign is shaping up to truly drive change in healthcare. A series of activities is planned to invite the active engagement of patients and family members in their own care, in improving healthcare delivery systems, and in guiding future research and policy in person-centered directions.
Patient-Centered Care Awareness Month Preview Materials:
- 2017 Patient-Centered Care Awareness Month logo, developed by patient advocate, Stacey Price, to depict a patient’s perspective of what engagement looks and feels like
- An Invitation to Engage, a call to action written BY patient and family advocates FOR patients and families to cut through healthcare industry jargon and describe, in simple terms, why patient and family engagement matters to everyone
- Patient Engagement in Research: A Toolkit for Patient-Family Advisory Councils, created by PFACs for PFACs as part of Planetree’s Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI).
- An #InvitationtoEngage social media toolkit to support all those commemorating Patient-Centered Care Awareness Month in using their social media channels and networks to invite expanded participation and engagement.
- Bite-Sized On Demand Webinar: Patient Engagement in Clinical Trial Design An interview with Dr. Ruth Carlos and a team of patients about their PCORI-funded project to define a roadmap for patient engagement in imaging research. Join us to hear their recommendations about best practices for integrating the patient experience in clinical trial design, implementation, and results dissemination.
- Bite-Sized On Demand Webinar: Translating Evidence into Information that Consumers Can Use This year the National Academy of Medicine and Planetree released a discussion paper about the evidence-base for patient and family engaged care. Members of Planetree’s International Patient-Family Partnership Council translated the 38-page paper into a consumer-friendly summary. In this webinar, we will interview Lisa Freeman, one of the authors of the summary & Executive Director of Connecticut Center for Patient Safety, about her experience translating evidence for consumers in a way that they can understand.
- Bite-Sized On Demand Webinar: Barriers to Engaging In Research and How to Overcome Them As part of Planetree’s PCORI (Patient-Centered Outcomes Research) project to understand how patient-family advisory councils (PFACs) engage in research, we conducted focus groups with PFACs around the country. Join us to hear what we learned. In addition to sharing successes, we will share what PFACs said about barriers to engaging in research and their suggestions about how to overcome them.
- Hospitals and other care settings are coordinating a variety of events as well as distributing “I Am an Expert about Me” stickers to patients, and staff members are wearing “I Am Listening” buttons. Stickers can be ordered in multiples of 100 for $18.00. To place your order please contact Lorena Bedoya at 203-732-1360 or firstname.lastname@example.org