This toolkit as created BY patient and family advisors FOR patient and family advisors — and for the healthcare leaders who work with them. Organized around the conceptual model of patient engagement in research, it provides practical guidance for meaningfully involving patients and families throughout the research life cycle — from deciding what
In this document, we summarize common barriers and challenges that PFACs have to engaging in research and ways that they have found to overcome them.
These questions are designed to help start a dialogue about the ways in which patient and family partners can serve as meaningful members of the research team in every phase of the research life cycle.
In 2010, the state of Massachusetts enacted legislation requiring all hospitals to create and maintain Patient and Family Advisory Councils (PFACs). Learn about practices for meaningful consumer engagement in research from 11 hospitals in the state.
Submitted by the Institute for Patient and Family-Centered Care as part of Planetree’s Toolkit for PFAC Engagement in Research, these stories of patient & family advisors collaborating on research at Michigan Medicine provide first-hand accounts of why engagement matters.
Use this Sample Meeting Agenda for PFACs and Researchers to help participants develop deeper levels of perspective taking and identify the potential for partnerships between patients, families, and researchers.
This tool guides teams through the process of establishing meaningful and measurable goals for your person-centered care priorities. The worksheet walks teams through the steps of drawing on available evidence to ascertain a need, developing a plan to address that need, setting a target, and identifying a way to measure progress against that
This document introduces the concept of Relationship-Based Cleaning as an important strategy for improving patients’ perception of cleanliness.
Person-centered medication administration is equal parts provision of the medication AND communication about its purpose and any potential adverse side effects to be aware of. This document presents three key steps for enhancing communication with patients about their medications.
Plain Language Summary of the National Academy of Medicine’s Framework for Patient and Family Engaged Care
This plain language summary distils down the National Academy of Medicine’s January 2017 8-page discussion paper of patient and family engaged care (PFEC) and the links between PFEC and key priorities such as better health, better care, lower costs and better culture. All in 2 reader-friendly pages.